Having extensive experience with this condition, the team has conducted groundbreaking research that has advanced understanding of the disease and revolutionized the way CSF leaks are treated. Having treated more than 1,000 people with suspected or confirmed cerebrospinal fluid leak, patients travel to Duke from across the country and from Canada, Europe, the Far East, Africa, New Zealand, and Australia.įour Duke diagnostic and CT interventional neuroradiologists devote all of their time and energy to improving diagnosis and treatment for this debilitating disease. THE DUKE DIFFERENCEĭuke is one of only three centers in the country that has been working continuously on this problem over the past ten years. This lack of experience oftentimes means that patients are told to lie in bed indefinitely, with little other prospect for treatment. Even when the correct diagnosis is made, few physicians have experience in finding the source of the fluid leak and sealing it. Some may become suicidal because of the excruciating pain. They can become bedridden, consequently losing their jobs and becoming financially destitute. Patients can be of any age, but are often young or middle-aged and in the midst of the most productive years of their lives. Patients are often misdiagnosed with other headache conditions such as migraine, or even conditions like fibromyalgia or stroke. Although classic symptoms of CSF leaks are severe headaches that improve when lying down, a wide range of other symptoms that mimic other conditions can occur, making diagnosis difficult. Other causes of CSF leaks may be due to surgery or trauma.Once thought to be rare, we now recognize that this condition is much more common than previously thought. As a result of this leakage, patients with this condition suffer from debilitating headaches. This tear leads to leakage of the fluid that cushions the brain and spinal cord. Spinal cerebrospinal fluid (CSF) leaks, also known as Spontaneous Intracranial Hypotension, is a debilitating medical condition in which a small tear or hole forms in the outer membrane containing the fluid surrounding the spinal cord, often for no apparent reason.
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